Jones & Bartlett Learning Blog

    ALS Ice Bucket Challenge Brings Awareness to a Little Understood Disease

    Posted by Katie Hennessy on Aug 22, 2014 3:44:25 PM

    The Jones & Bartlett Learning Marketing Team taking part in the ALS Ice Bucket Challenge The Jones & Bartlett Learning marketing team taking part in the ALS Ice Bucket Challenge

    Over the past few weeks, the social media phenomenon known as the Ice Bucket Challenge has brought unprecedented attention and awareness for amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s Disease.

    With everyone from Charlie Rose to Benedict Cumberbatch to our very own teams at Jones & Bartlett Learning taking part in the challenge, the ALS Association reports that since the end of July, “more than 70,000 new donors” have contributed to the cause. According to Barbara Newhouse, President and CEO of The ALS Association,

    "We have never seen anything like this in the history of the disease. We couldn’t be more thrilled with the level of compassion, generosity and sense of humor that people are exhibiting as they take part in this impactful viral initiative."

    However, the ALS Association also notes that only about half of the general public fully understands the disease. One result of the Ice Bucket Challenge is the opportunity to explain that it is,

    "... a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. Motor neurons reach from the brain to the spinal cord and from the spinal cord to the muscles throughout the body. The progressive degeneration of the motor neurons in ALS eventually leads to their death. When the motor neurons die, the ability of the brain to initiate and control muscle movement is lost. With voluntary muscle action progressively affected, patients in the later stages of the disease may become totally paralyzed."

    Respiratory Management of ALS: Amyotrophic Lateral SclerosisJones & Bartlett Learning is committed to ALS awareness and education. One key resource is Respiratory Management of ALS: Amyotrophic Lateral Sclerosis by Lee Guion, RRT, MA, the first comprehensive textbook on the assessment and management of respiratory symptoms in ALS and other motor neuron diseases.

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    • Brings together the latest research, expert opinions, and treatment options for respiratory symptom management
    • Provides a detailed, step-by-step approach to assessment of upper and lower airway structures and how motor neuron loss impairs function
    • Treatment options emphasize symptom management and enhanced quality of life
    • Includes palliative care, end-of-life decision making, and long term mechanical ventilation

    To learn more about this title, visit our website.

    To find out more about ALS or donate, please visit www.alsa.org or www.petefrates.com.

    Topics: ALS, Ice Bucket Challenge, Lou Gehrig’s Disease, amyotrophic lateral sclerosis, Health Professions, Higher Education, Lee Guion, Respiratory Management of ALS

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